Wednesday I found myself reading a text message from Ian,
“Mayo appointment Oct 29 at 2:15… :)”
This is something we’d been hoping and praying for now for quite some
time. I was both excited as well
as scared. The doctors at Iowa
City are struggling to know what Ian’s illness is called. We thought it was
mitochondrial myopathy but then they decided that the muscle biopsy was not
definitive enough for this type of diagnosis. Another test they took was for myotonic dystrophy. The results won’t be back for a while
they said.
In the mean time, after waiting sometimes for weeks to hear
from the doctors to know what to do next, we were encouraged to look into
possibly going to Mayo. There is a
Mayo Clinic in Rochester MN about four hours from our house. The doctor at Iowa City was willing to
refer us. They set up an
appointment for December the 12th and said we could call twice a week between
now and then to see if there were any cancellations. The first time Ian called they told us they had an opening
for the very next week. They told
us to plan to be there for five to seven business days. I’m not quite sure what to expect since
every other doctor visit we’ve been to in the past has always resulted in them
not being able to find anything.
Maybe we’ll still be there next year? Maybe we should look for a house
near by to live in? Maybe rent is
cheaper in Rochester? I doubt it. But sometimes I think about it.
Once again I’m awed by the support coming from the Body of Christ. Within just a few hours of finding out
that we needed to go to Mayo, someone gifted us with a nights stay at a hotel
and through several other connections we now have a place to stay that is quite
near the Clinic. We feel blessed
by such generosity and we continue to feel God’s presence very close despite
living in our broken world.
Thank you for your continued love, support and prayers. Next week looks overwhelming to me but I know that with God's grace, we'll find His face in the midst of the week of challenges.
Thank you for your continued love, support and prayers. Next week looks overwhelming to me but I know that with God's grace, we'll find His face in the midst of the week of challenges.
